The patient experience of diagnostic error

Edita Falco edita.falco at GMAIL.COM
Sun Oct 20 15:03:32 UTC 2013


Am afraid that not only rare diseases are  misdiagnosed..much common
conditions are usually misdiagnosed or  delayed
appendicitis, intususseption, hearth attack meningitis..and a long list!


On Sat, Oct 19, 2013 at 10:55 PM, Graber, Mark <Mark.Graber at va.gov> wrote:

> Hi Tim - you've asked an interesting question and I'd be interested to
> know the answer too.  I'm not aware of any studies that have studied the
> patient's reactions to diagnostic error.  Lets see what others say, but the
> door may be open for you to be the first to study this.
>
> Our Society has been discussing the possibility of sponsoring a web site
> for patients to tell their diagnostic error stories.  This would be an
> ideal place to identify patients who might be willing to participate in
> such a study.  In the meantime, I'm sure the people on this listserv could
> help you identify a good number of such patients if you wanted us to do
> that.  I'm just not sure the patients we know would be a representative
> sample though, as you might imagine.
>
>    Mark
>
> Mark L Graber, MD FACP
> Senior Fellow, RTI International
> Professor Emeritus, SUNY Stony Brook School of Medicine
> Founder and President, Society to Improve Diagnosis in Medicine
> Phone:   919 990-8497
> [cid:3465060902_18428732]
>
>
> ________________________________
> From: "Siggs, Tim" <ts228 at LEICESTER.AC.UK>
> Reply-To: Society to Improve Diagnosis in Medicine <
> IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>, "Siggs, Tim" <ts228 at LEICESTER.AC.UK>
> Date: Sat, 19 Oct 2013 08:01:35 -0400
> To: <IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>
> Subject: [IMPROVEDX] The patient experience of diagnostic error
>
> Good afternoon all,
>
> I am a Clinical Psychology trainee at the University of Leicester, UK,
> with an interest in Diagnostic Error and am conducting research into this
> area for my doctoral thesis. As a clinical psychologist to be,I am
> particularly interested in the patient experience of diagnostic error with
> a view to understand the implications of either experiencing, or perceiving
> the experience of, a diagnostic error with reference to future health
> behaviours in patients with chronic illnesses e.g. self management of a
> chronic condition, adjustment, treatment adherence etc. I have followed
> this listserv for a number of months and have found it to be an interesting
> and insightful source of topical information, thank you all.
>
> I am writing today to ask for thoughts and suggestions regarding my
> research both generally and for a specific question. Firstly there appears
> to be a lack of published studies exploring the depth of experiencing
> diagnostic error from a patient perspective, there are several studies
> looking at adverse events as a whole which include diagnostic error within
> them (e.g. Elder et al., 2005; Entwistle et al., 2010; Kistler et al.,
> 2010; Kuzel et al., 2004; Mazor et al., 2012; Molassiotis et al., 2009;
> Ocloo, 2010), but do not offer specification of the diagnostic error
> experience in itself, and I believe that the impact may be very different
> for diagnostic error. I feel that illuminating this perspective may help to
> address the psychological and emotional impact of diagnostic error such as
> that which can present in a medical psychology department, and this
> knowledge may also inform ideas regarding the process of diagnostic error
> from the patient's perspective. So my question to ask is does anyone know
> of any studies, particularly qualitative, that examine the patient
> experience of diagnostic error or have any particular thoughts on this
> topic area? In particular I'm interested to know if there are any
> identified (evidence based?) approaches to supporting patients who have
> experienced diagnostic error anyone is aware of?
>
> Having searched much of the literature I am cognizant of the moves to
> bring the patient into the patient safety process and also diagnostic error
> and hope that my proposed research can add to this. Any thoughts or ideas
> you may have are welcomed.
>
> Many Thanks
>
> Tim
>
> Tim Siggs
> Trainee Clinical Psychologist
> University of Leicester
>
>
>
>
>
> Moderator: Lorri Zipperer Lorri at ZPM1.com, Communication co-chair, Society
> for Improving Diagnosis in Medicine
>
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> Moderator: Lorri Zipperer Lorri at ZPM1.com, Communication co-chair, Society
> for Improving Diagnosis in Medicine
>
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