The patient experience of diagnostic error

Peggy Zuckerman peggyzuckerman at GMAIL.COM
Sun Oct 20 18:10:17 UTC 2013


I agree that more common diseases are misdiagnosed, and those very critical
ones are naturally cancer--30-40%of ovarian and kidney cancers are
misdiagnosed.  The kinder patients refer to these as "late" diagnosis, with
the typical shock of the diagnosis leaving them more ill than they would
have been, more debilitated, etc.

Other groups of digestive and immune diseases are also typically
misdiagnosed.  Check out the stories on lupus, IRS and such.

Peggy Zuckerman, whose "tiny scabbed over ulcer" was really a 10cm kidney
tumor


On Sun, Oct 20, 2013 at 8:03 AM, Edita Falco <edita.falco at gmail.com> wrote:

> Am afraid that not only rare diseases are  misdiagnosed..much common
> conditions are usually misdiagnosed or  delayed
> appendicitis, intususseption, hearth attack meningitis..and a long list!
>
>
> On Sat, Oct 19, 2013 at 10:55 PM, Graber, Mark <Mark.Graber at va.gov> wrote:
>
>> Hi Tim - you've asked an interesting question and I'd be interested to
>> know the answer too.  I'm not aware of any studies that have studied the
>> patient's reactions to diagnostic error.  Lets see what others say, but the
>> door may be open for you to be the first to study this.
>>
>> Our Society has been discussing the possibility of sponsoring a web site
>> for patients to tell their diagnostic error stories.  This would be an
>> ideal place to identify patients who might be willing to participate in
>> such a study.  In the meantime, I'm sure the people on this listserv could
>> help you identify a good number of such patients if you wanted us to do
>> that.  I'm just not sure the patients we know would be a representative
>> sample though, as you might imagine.
>>
>>    Mark
>>
>> Mark L Graber, MD FACP
>> Senior Fellow, RTI International
>> Professor Emeritus, SUNY Stony Brook School of Medicine
>> Founder and President, Society to Improve Diagnosis in Medicine
>> Phone:   919 990-8497
>> [cid:3465060902_18428732]
>>
>>
>> ________________________________
>> From: "Siggs, Tim" <ts228 at LEICESTER.AC.UK>
>> Reply-To: Society to Improve Diagnosis in Medicine <
>> IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>, "Siggs, Tim" <ts228 at LEICESTER.AC.UK
>> >
>> Date: Sat, 19 Oct 2013 08:01:35 -0400
>> To: <IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>
>> Subject: [IMPROVEDX] The patient experience of diagnostic error
>>
>> Good afternoon all,
>>
>> I am a Clinical Psychology trainee at the University of Leicester, UK,
>> with an interest in Diagnostic Error and am conducting research into this
>> area for my doctoral thesis. As a clinical psychologist to be,I am
>> particularly interested in the patient experience of diagnostic error with
>> a view to understand the implications of either experiencing, or perceiving
>> the experience of, a diagnostic error with reference to future health
>> behaviours in patients with chronic illnesses e.g. self management of a
>> chronic condition, adjustment, treatment adherence etc. I have followed
>> this listserv for a number of months and have found it to be an interesting
>> and insightful source of topical information, thank you all.
>>
>> I am writing today to ask for thoughts and suggestions regarding my
>> research both generally and for a specific question. Firstly there appears
>> to be a lack of published studies exploring the depth of experiencing
>> diagnostic error from a patient perspective, there are several studies
>> looking at adverse events as a whole which include diagnostic error within
>> them (e.g. Elder et al., 2005; Entwistle et al., 2010; Kistler et al.,
>> 2010; Kuzel et al., 2004; Mazor et al., 2012; Molassiotis et al., 2009;
>> Ocloo, 2010), but do not offer specification of the diagnostic error
>> experience in itself, and I believe that the impact may be very different
>> for diagnostic error. I feel that illuminating this perspective may help to
>> address the psychological and emotional impact of diagnostic error such as
>> that which can present in a medical psychology department, and this
>> knowledge may also inform ideas regarding the process of diagnostic error
>> from the patient's perspective. So my question to ask is does anyone know
>> of any studies, particularly qualitative, that examine the patient
>> experience of diagnostic error or have any particular thoughts on this
>> topic area? In particular I'm interested to know if there are any
>> identified (evidence based?) approaches to supporting patients who have
>> experienced diagnostic error anyone is aware of?
>>
>> Having searched much of the literature I am cognizant of the moves to
>> bring the patient into the patient safety process and also diagnostic error
>> and hope that my proposed research can add to this. Any thoughts or ideas
>> you may have are welcomed.
>>
>> Many Thanks
>>
>> Tim
>>
>> Tim Siggs
>> Trainee Clinical Psychologist
>> University of Leicester
>>
>>
>>
>>
>>
>> Moderator: Lorri Zipperer Lorri at ZPM1.com, Communication co-chair,
>> Society for Improving Diagnosis in Medicine
>>
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>>
>>
>>
>>
>>
>>
>>
>> Moderator: Lorri Zipperer Lorri at ZPM1.com, Communication co-chair,
>> Society for Improving Diagnosis in Medicine
>>
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>
>
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> Moderator: Lorri Zipperer Lorri at ZPM1.com, Communication co-chair, Society
> for Improving Diagnosis in Medicine
>
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> Save the date: Diagnostic Error in Medicine 2013. September 22-25, 2013 in
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-- 
Peggy Zuckerman
www.peggyRCC.wordpress.com







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