The Patient experience of diagnostic error

Bill Thatcher BillThatcher at MINDSPRING.COM
Sat Oct 26 20:19:05 UTC 2013


This email is from tgideas at gmail.com. There was a technical glitch in
sending it that has been fixed.

 

Hi Tim - Here's some of my ideas, thoughts, etc.

 

*  Super Symptom Checker for the public -
http://tgideas.blogspot.com/2008/11/do-it-yourself-doctoring-wish-list.html

 

*  Example of above - https://solohealth.com/

 

*  SIDM - http://www.improvediagnosis.org/

 

*  CPC - http://www.cautiouspatientcommunities.org/

 

*  This Symptom Checker electronically works in the background, monitoring
doctor's notes, to provide "another opinion" on an ongoing basis - real time
- http://www.isabelhealthcare.com/home/default

 

Good luck to you, Tim and to all.

 

Let me know if I can help, in any way.  I just write what I think could be
done with healthcare - and maybe you all can make sense of it - and put it
into practice.  :-)

 

Tom

 

On Sat, Oct 19, 2013 at 7:01 AM, Siggs, Tim <ts228 at leicester.ac.uk> wrote:

Good afternoon all,

I am a Clinical Psychology trainee at the University of Leicester, UK, with
an interest in Diagnostic Error and am conducting research into this area
for my doctoral thesis. As a clinical psychologist to be,I am particularly
interested in the patient experience of diagnostic error with a view to
understand the implications of either experiencing, or perceiving the
experience of, a diagnostic error with reference to future health behaviours
in patients with chronic illnesses e.g. self management of a chronic
condition, adjustment, treatment adherence etc. I have followed this
listserv for a number of months and have found it to be an interesting and
insightful source of topical information, thank you all.

I am writing today to ask for thoughts and suggestions regarding my research
both generally and for a specific question. Firstly there appears to be a
lack of published studies exploring the depth of experiencing diagnostic
error from a patient perspective, there are several studies looking at
adverse events as a whole which include diagnostic error within them (e.g.
Elder et al., 2005; Entwistle et al., 2010; Kistler et al., 2010; Kuzel et
al., 2004; Mazor et al., 2012; Molassiotis et al., 2009; Ocloo, 2010), but
do not offer specification of the diagnostic error experience in itself, and
I believe that the impact may be very different for diagnostic error. I feel
that illuminating this perspective may help to address the psychological and
emotional impact of diagnostic error such as that which can present in a
medical psychology department, and this knowledge may also inform ideas
regarding the process of diagnostic error from the patient's perspective. So
my question to ask is does anyone know of any studies, particularly
qualitative, that examine the patient experience of diagnostic error or have
any particular thoughts on this topic area? In particular I'm interested to
know if there are any identified (evidence based?) approaches to supporting
patients who have experienced diagnostic error anyone is aware of?

Having searched much of the literature I am cognizant of the moves to bring
the patient into the patient safety process and also diagnostic error and
hope that my proposed research can add to this. Any thoughts or ideas you
may have are welcomed.

Many Thanks

Tim

Tim Siggs
Trainee Clinical Psychologist
University of Leicester
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