KevinMD post and Tedx about my sister's delay in diagnosis

Jason Maude Jason.Maude at ISABELHEALTHCARE.COM
Thu Oct 8 09:01:23 UTC 2015


The history of medicine shows that many key advances take a generation, or more, to be adopted. Atul Gawande wrote a brilliant article on why ideas in medicine get adopted at different speeds looking at anesthesias versus antiseptics  http://www.newyorker.com/magazine/2013/07/29/slow-ideas

Most industries either need to be shamed into doing the right thing or be told to by regulators. In order to be shamed we normally need a big event that shocks everybody. With medical error this doesn’t really happen as it’s one by one, albeit relentlessly. This is why “To Err is Human” was clever to conjure up the image of a jumbo jet crashing each day to show the amount of people being killed due to medical error.

My view is that we are close (helped enormously by the IOM report) to the tipping point with diagnostic error but will need regulators to give the final push. In order to do that though they will need a measure. This is why I think it is very important that we come up with a measure now which can be used and not wait 5 years before a perfect one has been discovered and agreed on.

Documenting a differential in the EMR is a good proxy measure while we wait for the perfect one especially since the IOM report recommended that EMR vendors provide a place for the ddx to be recorded. It was also interesting to see from one of the oral plenary abstracts at DEM that the state of New South Wales (NSW) in Australia is making ‘documenting the ddx’ part of their "Take 2 –Think, Do” framework to improve the diagnostic process in NSW.

Regards

Jason Maude
Founder and CEO Isabel Healthcare
Tel: +44 1428 644886
Tel: +1 703 879 1890
www.isabelhealthcare.com<http://www.isabelhealthcare.com/>

From: robert bell <0000000296e45ec4-dmarc-request at LIST.IMPROVEDIAGNOSIS.ORG<mailto:0000000296e45ec4-dmarc-request at LIST.IMPROVEDIAGNOSIS.ORG>>
Reply-To: Society to Improve Diagnosis in Medicine <IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG<mailto:IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>>, robert bell <rmsbell200 at YAHOO.COM<mailto:rmsbell200 at YAHOO.COM>>
Date: Wednesday, 7 October 2015 23:04
To: "IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG<mailto:IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>" <IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG<mailto:IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>>
Subject: Re: [IMPROVEDX] KevinMD post and Tedx about my sister's delay in diagnosis

Publicity is good, but I would also think that knowing the big hindrances to progress and understanding the problem would be useful.

Rob Bell
On Oct 7, 2015, at 10:25 AM, Carol Gunn <office at OCCUPATIONALMEDICINEOREGON.COM<mailto:office at OCCUPATIONALMEDICINEOREGON.COM>> wrote:

My view on this:

We need the subject to get to a tipping point.  Saw this with children and peanut allergies, police work and racial tensions, etc.  It is not there yet, but moving slowly closer. For me, it was not until I had a tragic experience, that I learned the statistics.  It all changed after I read Anna's 14,000 page medical record.  I'm on Sermo, the doctors' blog - not a lot of endorsement for the IOM reports.

So I focused on a different route to share my mission. Hoping that similar to air bags in cars, when the public learns and then starts demanding a service/feature, we may get more traction.

What also comes to mind is the hashtag, #PatientsLivesMatter.

Carol

-------- Original Message --------
Subject: Re: [IMPROVEDX] KevinMD post and Tedx about my sister's delay
in diagnosis
From: robert bell <rmsbell200 at yahoo.com<mailto:rmsbell200 at yahoo.com>>
Date: Wed, October 07, 2015 8:56 am
To: "IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG<mailto:IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>"
<IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG<mailto:IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>>,
office at OCCUPATIONALMEDICINEOREGON.COM<mailto:office at OCCUPATIONALMEDICINEOREGON.COM>

Dear Carol,

We don’t get far with guns mainly because of the gun lobby.

Is there a healthcare “lobby,” overt or covert, that resists change as it pertains to patient safety?

I do not know but have wondered why we do not make too much progress in patient safety as a whole (diagnostic and other errors).

Is it just the bottom line lobby?

Rob Bell, MD
On Oct 7, 2015, at 7:34 AM, Carol Gunn <office at OCCUPATIONALMEDICINEOREGON.COM<mailto:office at OCCUPATIONALMEDICINEOREGON.COM>> wrote:

SIDM,

It is my belief, despite the recent IOM report, that most Americans are still unaware of the diagnostic dilemmas in medicine and the number of medical errors.  In this community here - it is a hot topic.  Not so much with others, even healthcare providers.  I believe that change willoccur faster when the public /media starts pushing for changes.

I have elected to share my story via KevinMD and Tedx.

Please share both liberally...  they are linked below. My Tedx was given prior to the IOM report release.

https://www.youtube.com/watch?v=Lu-HcylvuU8
http://www.kevinmd.com/blog/2015/10/its-time-for-health-care-to-stand-up-to-medical-errors-will-we.html

Thank you,
Carol Gunn MD

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West Sedona, AZ  86340-3668
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P.O. Box 3668
West Sedona, AZ  86340-3668
USA
Tel: Fax: 928 203-4517




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Moderator: David Meyers, Board Member, Society to Improve Diagnosis in Medicine


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