The danger for passive patients

Bob Latino blatino at RELIABILITY.COM
Wed Jan 27 11:56:19 UTC 2016


FYI - Sorrell King Update

https://www.linkedin.com/hp/update/6097880429627482112

Dr. Albert Wu, who participates on this forum, has been an instrumental part of this Foundations quantifiable success along with Peter Pronovost and a host of others.  This is an influential group that 'walks the talk' as demonstrated by their actions and results.


Robert J. Latino, CEO
Reliability Center, Inc.
1.800.457.0645
blatino at reliability.com
www.reliability.com

From: Samuel, Rana [mailto:Rana.Samuel at va.gov]
Sent: Tuesday, January 26, 2016 12:45 PM
To: IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG; Bob Latino <blatino at reliability.com>
Subject: RE: The danger for passive patients

I looked at some of the resources on the  Josie King foundation (JKF) website from the link below and was impressed by the tools they have developed to empower patients and enhance communication between patients and providers.  There are probably numerous organizations like JKF that have already invested considerable resources into developing tools. Can SIDM be involved in developing a database gathering information on the efficacy of these tools?

One way to start moving this field would be by acting as a central repository for tools and ideas and establishing (through RCTs or other appropriate means) a database of what works, and then strongly pushing for adoption of evidence based best practices.

From: Bob Latino [mailto:blatino at RELIABILITY.COM]
Sent: Tuesday, January 26, 2016 11:12 AM
To: IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG<mailto:IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>
Subject: [EXTERNAL] Re: [IMPROVEDX] The danger for passive patients

This is indeed sad.  What is more unfortunate is that such landmark cases are not hard to find in the U.S. either.  The average patient puts their full trust in the competency of their health care providers, and they do not challenge the professionals.  Often, if they do, they are shot down because they are layman and do 'not understand medicine'.

I think many on this forum will be familiar with this well-publicized case that happened at Hopkins a long time ago, The Josie King Story:

http://www.josieking.org/

Such cases are horrifying and a constant reminder that the patient and the family have to be very vigilant and persistent when they recognize something is 'not right' in the care provided to their loved ones.  Caregivers likewise have to recognize they should listen to the patients and families as they know their loved ones better than any caregiver ever will.

Robert J. Latino, CEO
Reliability Center, Inc.
1.800.457.0645
blatino at reliability.com<mailto:blatino at reliability.com>
www.reliability.com<http://www.reliability.com>

From: Jason Maude [mailto:jason.maude at ISABELHEALTHCARE.COM]
Sent: Tuesday, January 26, 2016 10:30 AM
To: IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG<mailto:IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG>
Subject: [IMPROVEDX] The danger for passive patients

The Daily Mail runs a truly tragic story today about a 1 year old who died from sepsis due to a very delayed diagnosis of pneumonia.

http://www.dailymail.co.uk/news/article-3416346/Bombshell-report-condemns-NHS-hours-service-not-safe-sick-children-blunders-cost-baby-life.html

The Mail had access to the NHS report which has not yet been published so it should be more detailed and accurate than most of their stories.

The care was pretty shocking but what also struck me was how the parents seemed too passive and, although their instincts were correct, they did not side step their GP and go to the hospital but just did what they were told to do. It seems like a great example of how being a passive patient can actually be dangerous. It shows how being an informed patient is not a luxury or nice thing to do but absolutely essential.

Regards
Jason

Jason Maude
Founder and CEO Isabel Healthcare
Tel: +44 1428 644886
Tel: +1 703 879 1890
www.isabelhealthcare.com<http://www.isabelhealthcare.com/>

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