Thousands of vets misdiagnosed in Veterans Affairs traumatic brain injury exam mishap - WXYZ.com

HM Epstein hmepstein at GMAIL.COM
Wed Nov 23 21:52:16 UTC 2016


It's a good question, Peggy. In marketing, we would say that communication doesn't happen until the person you're trying to reach has heard you and responded. 

I'm guessing that this all came about after a review of EMR's to identify missed triggers. If so, the VA deserves some kudos for a better late than never effort. However, now there should be an all out effort by the VA to find these patients if in retrospect they believe they've missed concussions or TBI's. 

Perhaps the patients ended up going out of the system to find relief or perhaps they're suffering still but they deserve the respect of being found and cared for. One letter is too little but at least the press release can be of help if the story is picked up in city papers all across the country.

Best,
Helene

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On Nov 23, 2016, at 1:00 PM, Peggy Zuckerman <peggyzuckerman at gmail.com> wrote:

I also read the complete article which did not explain fully exactly who made and/or failed to make the diagnosis of the patients.  Most people would assume that this kind of diagnosis needs an expert practitioner, and perhaps multiple visits and tests.  If there is no kind of patient-reported symptoms which are accepted into the record and captured, so that all those who might examine and treat the patient, this is an oversight.  

With the many problems that exist in electronic records, and with the special issues where there are psychological barrier to seeing the records, how do the vets get a review of their issue, know if they were properly diagnosed, etc?

And are seven months and one letter enough to find those in need?

Peggy

Peggy Zuckerman
www.peggyRCC.com

> On Wed, Nov 23, 2016 at 8:56 AM, HM Epstein <hmepstein at gmail.com> wrote:
> Hi Mark:
> 
> I would agree despite the headline if this paragraph wasn't part of the article:
> 
> "They were not conducted by properly qualified neurological and psychiatric specialists, resulting in not only potential misdiagnosis, but disability compensation claims that may have been unfairly denied."
> 
> As most on this listserv know, TBIs can be difficult to diagnose even for doctors who are trained to do so. That's why the potential new blood test has made headlines. But the VA are the ones who said the neurologists and psychiatrists were not properly qualified. 
> 
> Perhaps you can help me understand what was meant by "properly qualified". The Devil's in the details and this article is missing too many of them. 
> 
> Thank you, Mark. 
> 
> Best wishes for a Happy Thanksgiving,
> Helene
> 
> -- 
> hmepstein.com 
> @hmepstein
> Mobile: 914-522-2116
> 
> Sent from my iPhone
> 
> 
> 
> On Nov 23, 2016, at 11:05 AM, Mark Graber <mark.graber at improvediagnosis.org> wrote:
> 
> Please excuse my bias as a VA provider, but the headline about misdiagnosis of TBI in combat veterans is probably highly misleading.  This is NOT a story about botched diagnoses.  The VA has been at the forefront of studying and trying to characterize and diagnose TBI since the war in Iraq.  This is a story about how much progress has been made in recognizing and understanding TBI over the past decades, transparency in admitting that the science of diagnosis in this field has advance considerably and trying to do the right thing for the affected patients (and being able to do so by tracking them through registries).  Its a story of how diagnosis improves, more than how it fails.
> 
> Mark
> 
> Mark L Graber MD FACP
> Senior Fellow, RTI International
> Professor Emeritus, SUNY Stony Brook
> President, Society to Improve Diagnosis in Medicine
> 
> 
> 
> 
> On Nov 23, 2016, at 9:37 AM, HM Epstein <hmepstein at GMAIL.COM> wrote:
> 
> 25 thousand veterans were just notified their traumatic brain injury was misdiagnosed. VA admits to 8 years of mishandling how the patients were diagnosed and treated. And then how their claims were rejected. 
> 
> This article is just about one city's numbers. 
> 
> http://www.wxyz.com/news/hundreds-of-local-vets-misdiagnosed-in-veterans-affairs-traumatic-brain-injury-exam-mishap
> 
> Best,
> Helene
> -- 
> hmepstein.com 
> @hmepstein
> Mobile: 914-522-2116
> 
> Sent from my iPhone
> 
> 
> 
> 
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