Delayed diagnosis of polycystic ovary syndrome

Helen Haskell haskell.helen at GMAIL.COM
Sat Dec 3 18:48:50 UTC 2016


This is sort of a disturbing study. As Victoria's answer illustrates, they
have avoided asking the single most important question: "Why do you think
your diagnosis was delayed?" The answers might not always be flattering,
but they are more likely than anything to give you the information you need
to bring about change.

On Sat, Dec 3, 2016 at 12:51 PM Victoria Nicholls <nichollsvi2 at gmail.com>
wrote:

> Good morning,
>
>
>
> I can answer that: because the only thing that matters to ob/gyn's who
>
> diagnose & treat it (usually) ONLY care about doing so if you are
>
> going to get pregnant. If you aren't, take some BCP and go.
>
>
>
> Flat out, I was in a local PCOS support group, helped out a national
>
> PCOS support group and the message was the same across many women in
>
> America. If you are getting pregnant, we care, otherwise don't bother
>
> us.
>
>
>
> Harsh reality.
>
>
>
> Vic
>
>
>
>
>
> On Sat, Dec 3, 2016 at 8:06 AM, Mark Graber <graber.mark at gmail.com> wrote:
>
> > This is a just-released report that surveyed patients in an
> international registry about their diagnosis of PCOS.  We will be seeing a
> lot more patient-reported outcomes data in the future, and this study is an
> interesting demonstration of both its power and its limitations.  Over a
> third of women reported over a 2-year delay in establishing the diagnosis,
> but the variability in time-to-diagnosis was large.  We need studies like
> this to begin understanding what timeliness means.  Next step - exploring
> why the diagnosis was established expeditiously for many patients, and so
> slowly for many others.
>
> >
>
> > Mark L. Graber MD FACP
>
> > President, Society to Improve Diagnosis in Medicine
>
> >
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