Resources for diagnostic dilemmas
edbjwinslow at GMAIL.COM
Fri Dec 23 17:42:15 UTC 2016
There is also a cloud source resource, "CroudMed":
https://www.crowdmed.com/ . I have tried to work with them, but haven't
had a lot of success. Nonetheless, it might be a source. I also assume that
you and your friend have considered the NIH center on rare diseases:
Good luck to your teacher and his son.
Best to All this season of rebirth and hope!
On Fri, Dec 23, 2016 at 6:56 AM, Hess, Dr. Donald <
dhess at susquehannahealth.org> wrote:
> Out of the blue, I was contacted by my 10th grade biology teacher who
> asked me for help regarding his grandson. Here is the gist of what I
> understand: He is in his early 20’s. 4 years ago he had a severe case of
> infectious mono. Since then his spleen has remained mildly enlarged and
> becomes excruciatingly painful during recurrent episodes flu-like symptoms.
> He has seen academic specialists of all stripes and has been extensively
> imaged. As far as I can discern, he has yet to receive a satisfactory
> explanation for his symptoms.
> I searched the literature and didn’t find anything that even remotely
> resembled his problem, other than a 2001 case report in Military Medicine.
> I realize that the SIDM list is not the place to sort this out. So here’s
> my question: Are there any online forums (or other resources) where
> clinicians and/or patients share diagnostic dilemmas?
> Regards, Don
> Dr. Donald Hess
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