both sides of the coin was Re: [IMPROVEDX] Doctor lectures Valley health professionals on dangers of errors

Peggy Zuckerman peggyzuckerman at GMAIL.COM
Wed May 17 22:53:30 UTC 2017


​Dear Edita,
I do appreciate the compliment, but do wish you to know that I am not a
doctor, but a patient.  It was my own misdiagnosis, which nearly cost me my
life, and the subsequent realization that I did not know how to advocate
for myself that brought me into this world.

With other colleagues on the SIDM Patient Engagement Committee, we created
a Patient ToolKit with the goal of helping the patient to prepare for a
doctor's appointment.  There is value in it, even if the doctor never sees
it, as the patient is guided through his own understanding of the symptoms,
what he has tried, what has worked, what has not, the medications that may
affect symptoms and advises the patient to ask about test results and to
assess his own response.

The Patient ToolKit is one of many resources on the SIDM website, and this
one is especially useful as it can be added to a website, filled in online,
and one hopes, teaches the patient how to participate in the diagnostic
process.  No copyrights or restrictions, but does carry our SIDM logo as a
reminder of its source.

Sincerely,
Peggy​


Peggy Zuckerman
www.peggyRCC.com

On Wed, May 17, 2017 at 2:41 PM, Edita Falco <edita.falco at gmail.com> wrote:

> Excelent  point Dr Zuckerman!!!
>
> On Wed, May 17, 2017 at 3:15 PM, Peggy Zuckerman <peggyzuckerman at gmail.com
> > wrote:
>
>> The unaddressed issue in every medical encounter is the uncertainty that
>> exists. There have been and will continue to be wondrous gains in the
>> medical world that benefit us all.  But, the diagnosis and treatment of the
>> billions of different people, under multiple circumstances, and in the
>> dynamic changing individual body newly paired with a treatment of any kind
>> is a task that exemplifies uncertainty.
>>
>> A clear(!) recognition of uncertainty, both in the medical world and the
>> individual's world would go a long way to create an atmosphere of
>> partnership.The notion that the doctor knows all, and that medicine is
>> infallible, has been costly to everyone.  The patient who comes to realize
>> that this is not true feels betrayed, which exacerbates the situation.
>>
>> When we can comfortably discuss the uncertainty of the diagnosis, of the
>> treatment options, of the variables that the patient has, then we can begin
>> to make progress towards the 'best possible' outcomes.  The human and
>> financial losses that occur cannot be tolerated.  This requires the right
>> of the patients to partner in every medical interaction to the fullest
>> extent is the basis for the fix of healthcare.
>>
>> Peggy Zuckerman
>>
>> Peggy Zuckerman
>> www.peggyRCC.com
>>
>> On Wed, May 17, 2017 at 9:38 AM, Vic Nicholls <nichollsvi2 at gmail.com>
>> wrote:
>>
>>> Tom I say this because health care is expensive. Its not like 100 years
>>> or more ago when people did home remedies and death was simply a part of
>>> life. We frankly have to admit the hard fact: the US cannot support paying
>>> for all the health care of people. Hard decisions have to be made. Gotta
>>> draw the line, and vaccination is a perfect example.
>>>
>>> In addition, do you know the Somali reaction to the anti vaxxers? They
>>> were mad. They realized they got taken advantage of. They realized that
>>> doctors can be trusted.
>>>
>>> So sad. It didn't have to happen. It can be stopped.
>>>
>>> I am a harmed patient in more ways than one. Yet I want doctors to own
>>> up and fix mistakes. You don't do yourselves as a profession any good when
>>> people realize mistakes were made because that's why they won't trust you
>>> for anything. I don't want people to throw the baby (doc) out with the
>>> bathwater (all medical info/research). That's what I've seen a lot of them
>>> do: every sort of woo they'll hold onto because of harm from the/one
>>> medical establishment. It grows into the massive disaster that is anti
>>> vaccination, autism causes, etc.
>>>
>>> It starts by saying we are adult enough, as Tom put below, to stand up
>>> for our mistakes and show others how to react.
>>>
>>> Vic
>>>
>>> On 5/17/2017 9:10 AM, Tom Benzoni wrote:
>>>
>>> Maybe getting a bit tangential, but Vic brings up an interesting
>>> question.
>>>
>>> One feature that differentiates adults from children in a major way is
>>> taking responsibility for one's own choices (and conversely, not taking
>>> responsibility for other's choices, but that's a topic for another day.)
>>>
>>> Rather simple solution: If a person, family or group opts out of
>>> vaccination (not true medical exemption) they could post a bond. An actuary
>>> could price this out; we can with carbon credits. This bond could be posted
>>> by the entity proposing (in the way an employer bonds her employees) or
>>> bought a la carte. This would give an air of legitimacy to the anti-vaxxers
>>> I think they'd welcome. Don't drink from a trough you don't help fill.
>>>
>>> tom
>>>
>>>
>>>
>>> ------------------------------
>>>
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>>>
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>>
>>
>>
>> ------------------------------
>>
>>
>> To unsubscribe from IMPROVEDX: click the following link:
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>> .IMPROVEDIAGNOSIS.ORG
>>
>> Moderator:David Meyers, Board Member, Society for Improving Diagnosis in
>> Medicine
>>
>> To learn more about SIDM visit:
>> http://www.improvediagnosis.org/
>
>
>






Moderator: David Meyers, Board Member, Society to Improve Diagnosis in Medicine


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