both sides of the coin was Re: [IMPROVEDX] Doctor lectures Valley health professionals on dangers of errors

Margaret Aranda drmargaretaranda at YAHOO.COM
Thu May 18 19:18:20 UTC 2017


Dear Peggy,
I, too, nearly lost my life and had to help in my diagnosis. I am a doctor and I knew how to advocate.
In searching for the reasons why this happened, I learned a lot about physician attitudes towards patient complaints. I'm off to visit your website and am grateful for your insight.
Very grateful for your work in this area,
Margaret 818-584-9331

Dr. Margaret Arandahttp://drmargaretaranda.wordpress.com

AuthorExpert, Invisible Illnesses & Social Media "Always Lookin' Out for You!"




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    On Wednesday, May 17, 2017 6:21 PM, Peggy Zuckerman <peggyzuckerman at GMAIL.COM> wrote:
 

 ​Dear Edita,I do appreciate the compliment, but do wish you to know that I am not a doctor, but a patient.  It was my own misdiagnosis, which nearly cost me my life, and the subsequent realization that I did not know how to advocate for myself that brought me into this world.  
With other colleagues on the SIDM Patient Engagement Committee, we created a Patient ToolKit with the goal of helping the patient to prepare for a doctor's appointment.  There is value in it, even if the doctor never sees it, as the patient is guided through his own understanding of the symptoms, what he has tried, what has worked, what has not, the medications that may affect symptoms and advises the patient to ask about test results and to assess his own response.
The Patient ToolKit is one of many resources on the SIDM website, and this one is especially useful as it can be added to a website, filled in online, and one hopes, teaches the patient how to participate in the diagnostic process.  No copyrights or restrictions, but does carry our SIDM logo as a reminder of its source.
Sincerely,Peggy​

Peggy Zuckerman
www.peggyRCC.com

On Wed, May 17, 2017 at 2:41 PM, Edita Falco <edita.falco at gmail.com> wrote:

Excelent  point Dr Zuckerman!!!
On Wed, May 17, 2017 at 3:15 PM, Peggy Zuckerman <peggyzuckerman at gmail.com> wrote:

The unaddressed issue in every medical encounter is the uncertainty that exists. There have been and will continue to be wondrous gains in the medical world that benefit us all.  But, the diagnosis and treatment of the billions of different people, under multiple circumstances, and in the dynamic changing individual body newly paired with a treatment of any kind is a task that exemplifies uncertainty.
A clear(!) recognition of uncertainty, both in the medical world and the individual's world would go a long way to create an atmosphere of partnership.The notion that the doctor knows all, and that medicine is infallible, has been costly to everyone.  The patient who comes to realize that this is not true feels betrayed, which exacerbates the situation.
When we can comfortably discuss the uncertainty of the diagnosis, of the treatment options, of the variables that the patient has, then we can begin to make progress towards the 'best possible' outcomes.  The human and financial losses that occur cannot be tolerated.  This requires the right of the patients to partner in every medical interaction to the fullest extent is the basis for the fix of healthcare.
Peggy Zuckerman
Peggy Zuckerman
www.peggyRCC.com

On Wed, May 17, 2017 at 9:38 AM, Vic Nicholls <nichollsvi2 at gmail.com> wrote:

  Tom I say this because health care is expensive. Its not like 100 years or more ago when people did home remedies and death was simply a part of life. We frankly have to admit the hard fact: the US cannot support paying for all the health care of people. Hard decisions have to be made. Gotta draw the line, and vaccination is a perfect example. 
 
 In addition, do you know the Somali reaction to the anti vaxxers? They were mad. They realized they got taken advantage of. They realized that doctors can be trusted. 
 
 So sad. It didn't have to happen. It can be stopped. 
 
 I am a harmed patient in more ways than one. Yet I want doctors to own up and fix mistakes. You don't do yourselves as a profession any good when people realize mistakes were made because that's why they won't trust you for anything. I don't want people to throw the baby (doc) out with the bathwater (all medical info/research). That's what I've seen a lot of them do: every sort of woo they'll hold onto because of harm from the/one medical establishment. It grows into the massive disaster that is anti vaccination, autism causes, etc. 
 
 It starts by saying we are adult enough, as Tom put below, to stand up for our mistakes and show others how to react. 
 
 Vic 
 
 On 5/17/2017 9:10 AM, Tom Benzoni wrote:
  
 Maybe getting a bit tangential, but Vic brings up an interesting question. 
  One feature that differentiates adults from children in a major way is taking responsibility for one's own choices (and conversely, not taking responsibility for other's choices, but that's a topic for another day.) 
  Rather simple solution: If a person, family or group opts out of vaccination (not true medical exemption) they could post a bond. An actuary could price this out; we can with carbon credits. This bond could be posted by the entity proposing (in the way an employer bonds her employees) or bought a la carte. This would give an air of legitimacy to the anti-vaxxers I think they'd welcome. Don't drink from a trough you don't help fill. 
  tom  
  
 
 

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