Rate of misdiagnosis getting worse!

Shapiro, Barbara Barbara.Shapiro at UHHOSPITALS.ORG
Sun Oct 1 11:29:45 UTC 2017


Peggy, agree with you completely. And the current system only makes things worse - doctors are so rushed through things - we are penalized if we have an obsessive compulsive mindset, which i do - and our 'productivity' goes down.


Barbara E. Shapiro, M.D.,Ph.D.
University Hospitals Cleveland Medical Center




From: Peggy Zuckerman
Sent: 9/30/17, 3:14 PM
To: Society to Improve Diagnosis in Medicine
Subject: Re: [IMPROVEDX] Rate of misdiagnosis getting worse!
​Dear Tom,
I do know that lawsuits are not the solution to the medical errors and sad outcomes that do occur in our world.  And I sued, not with the expectation to win.  I was a lawyer's daughter, knew enough about the legal system in California, and knew that the legal costs would be mine to bear.  Aware of that alone, and not having any other obvious recourse to bring attention to the doctor (and his colleagues) as to the obvious misdiagnosis, I sued.  The personal satisfaction I had from doing that was to know that he and others in his practice and hospital will never again be dismissive of a patient with an extremely low hemoglobin (6.6hgb), which he attributed to a 'tiny, scabbed-over stomach ulcer'.
The first endoscopy pathology report which he certainly had access to within 24-48 hours showed 'no frank ulcer and no H. pylori".  I assume that he did not see this report or ignored it.  He may have ignored the recommendations by the admitting ER doctor that I see a hematologist or rheumatologist. He never took a personal health or family history until 7 months into my treatment, and upon my noting my father had been an alcoholic, he set up a liver biopsy to "confirm the patient's cirrhosis".  The ultrasound in prep for that biopsy revealed a 10 cm tumor and the lower lobes with multiple metastases.  And the race was on.

Had I known of another way to prevent him from dismissing this situation as some unfortunate incident or stroke of bad luck, I would have used other means.  There were none apparent to me.

On the solution side of things, for which I now work, I now advocate that all patients get immediate access to all their medical records as soon as they are created. (If the patient can't get the record immediately, one has to assume that the doctor also lacks the record--and needed information--on which to do his work.)  Had I had the path report and the ER doctor's recommendations, I could have asked that simple, golden question, "What else could it be?".

Had there been a visible system at the hospital who assigned me to the care of this particular doctor, against despite the ER doctors' recommendations, I would have filed a complaint/grievance/request for explanation.  Most aggrieve and harmed patients really want to stop the ill-treatment, and to know that their suffering will not be repeated by other patients.

I am alive and well because of the good medical system in the US, having survived the Stage IV kidney cancer which was signaled by my 6.6 hemoglobin.  Family members are similarly alive and doing well, and in ten minutes I will go visit a new grandson who was born, thanks to a surrogacy.  My daughter had a botched surgery about 15 years prior, which made it impossible to have children naturally, and yet there is a beautiful newborn.  I am thankful for these many blessings, and determined to be part of the solution to stopping misdiagnoses and medical errors.

SIncerely,
Peggy

Peggy Zuckerman
www.peggyRCC.com<http://www.peggyRCC.com>

On Sat, Sep 30, 2017 at 9:46 AM, Twest54973 <twest54973 at yahoo.com<mailto:twest54973 at yahoo.com>> wrote:
Peggy

Its disheartening that you even mention that lawsuits are a "solution" or remedy for the current state of affairs

Lawsuits rarely improve hospital care processes: instead,  they are helping bankrupt our healthcare system via the over usage if defensive medicine , forcing doctors to change their practice patterns , and actually can hurt future pts

As an high risk pregnancy obstetrician  practicing in a highly litigious state , I have been sued approx 12 times in my 25 yr career and have three active lawsuits against me right now ... (american families unfortunately have an unrealistic perception of the ability of modern obstetrics to prevent fetal injury and harm)

Litigation is one important reason why the cesarean rate in the USA is around 33%

And the repeat cesarean rate is around 90%

Which can and does result in harm to women

Simple example of inappropriate litigation : a parent carries a familial gene for a thrombophilia (gene that predispose to blood clots), the baby develops a stroke before birth resulting in harm, family sues because the baby wasn't delivered "before the stroke" ; hospital system settles the case to avoid prolonged and expensive litigation

Obviously true medical errors do occur but the tort system is filled with cases of harm that were not the result of medical error (at least in obstetrics)

We need to focus on revamping the tort system and developing a "no-fault injury compensation" system similar to the vaccine manufacturer system whereby hospitals are encouraged/mandated to report true errors (in order to fix the relevant etiologies)

And where the injured pts are duly compensated and included in the remediation process

Respectfully
Tom

Thomas Westover MD
Vice Chair NJ section
American College OBGYN
Chair: NJ Hospital Association Statewide Perinatal Safety Collaborative
Cooper Medical School
Camden NJ

Sent from my iPhone

peggyzuckerman at GMAIL.COM> wrote:

Jason, I would say that most patients are either too busy trying to deal with the consequences of the medical errors, or think that these errors are atypical--that they had the single bad doctor or single poor hospital.

Furthermore, as they come to understand that they have been harmed, there is no clear way to correct those errors or even bring some attention to a problem.  Often, the only option seems to bring a legal suit, and few patients have the heart or financial resources to do that.

Peggy

Peggy Zuckerman
www.peggyRCC.com<http://www.peggyRCC.com>

On Fri, Sep 29, 2017 at 8:05 AM, Jason Maude <jason.maude at isabelhealthcare.com<mailto:jason.maude at isabelhealthcare.com>> wrote:
The NPSF has just published an updated survey (attached with my highlights) of Americans’ experiences of medical error with pretty shocking results.

As a survey, we may think less of it but it essentially repeats and expands on questions from the first one done in 1997 and also one which our founding charity commissioned in 2005. The results are very consistent across all them. They also all used sample sizes of well over 2,000.

The shocking take away for me is that effectively the number of Americans who say they have experienced a misdiagnosis personally or of someone close to them is 24%, up from 17.5% in 2005. This is almost 1 in 4 of the adult population!

Either the figures are rubbish or how is it there are not riots on the streets?!

Regards
Jason

Jason Maude
Founder and CEO Isabel Healthcare
Tel: +44 1428 644886<tel:+44%201428%20644886>
Tel: +1 703 879 1890<tel:(703)%20879-1890>
www.isabelhealthcare.com<http://www.isabelhealthcare.com/>




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