Patient Diagnoses

Goeschel, Chris A Chris.A.Goeschel at MEDSTAR.NET
Fri Nov 24 14:21:58 UTC 2017


Thanks Peggy. We have great PFAQs across our health system and are just beginning to get them engaged in efforts to improve diagnosis. I suspect the breadth and depth of the stories we  hear will galvanize our efforts.

Chris Goeschel, ScD, MPA, MPS, RN, FAAN
Assistant Vice President, Quality
MedStar Health
MedStar Institute for Quality and Safety (MIQS)
3007 Tilden St., NW   Suite 5N
Washington DC 20008
Office: 202-364-6219           Mobile: 443-710-1819
chris.a.goeschel at medstar.net<mailto:chris.a.goeschel at medstar.net>
Website:  www.medstarhealth.org/quality-and-safety<http://www.medstarhealth.org/quality-and-safety>


From: Peggy Zuckerman [mailto:peggyzuckerman at GMAIL.COM]
Sent: Wednesday, November 22, 2017 5:34 PM
To: IMPROVEDX at LIST.IMPROVEDIAGNOSIS.ORG
Subject: Re: [IMPROVEDX] Patient Diagnoses

Every patient advocacy group could provide endless stories of poor and/or delayed diagnosis, the difficulty of finding a doctor who could understand their symptoms and the great joy at having some path --even if very difficult--vs being misdiagnosed.  Many are told they were delusional, too young to have the disease, too fat, too dumb, etc etc.

Most patients who are diagnosed at last are grateful beyond measure, and would certainly be pleased to help others avoid the problems that they had.  Do let the Patient Engagement Committee know if you want some typical stories.  No doubt all those in this group are sadly aware of lengthy misdiagnosis, and with those, the loss of opportunity for timely treatment.

Peggy Z



Peggy Zuckerman
www.peggyRCC.com<https://urldefense.proofpoint.com/v2/url?u=http-3A__www.peggyRCC.com&d=DwMFaQ&c=RvBXVp2Kc-itN3g6r3sN0QK_zL4whPpndVxj8-bJ04M&r=THFGbp-zakJHrrYvk5fq6mYDsg0LQzTZC3HqquC1MSk&m=qYu-RzR9yCLIhTFyfdMvUw-GEt0-BVsIvut9BzOLo60&s=_sQ4agiu-W7EKVGykDpiv4VGld4PoajgVTdqeH_d2fY&e=>

On Wed, Nov 22, 2017 at 1:20 PM, Tom Benzoni <benzonit at gmail.com<mailto:benzonit at gmail.com>> wrote:
That would be easily done, but the conversation has to be safe.
tom

On Wed, Nov 22, 2017 at 2:28 PM, Robert Bell <0000000296e45ec4-dmarc-request at list.improvediagnosis.org<mailto:0000000296e45ec4-dmarc-request at list.improvediagnosis.org>> wrote:
Dear list members,

I have been interested in the recent discussions about diagnostic problems.

However, I wondered if there might be more comment, more interest if the arguments were illustrated by examples. I wondered if we might learn something if, for example, the difficulties of diagnosing a Myocardial infarction were compared to say a Takotsuba cardiomyopathy (which I understand is not too uncommon).

Then I said to myself, is the reluctance to talk about the actual clinical situation in our discussions in some way governed by privacy considerations - and in the US the confining HIPPA regulations.

But there should be a way to overcome that by using fictitious stories, modified stories to preserve privacy, very old stories, etc., etc.

Would some list guidelines help and get us closer to the actual patient in our deliberations?

HAPPY THANKSGIVING TO ALL.

Rob Bell, MD





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