Boston Globe Medical Mystery

Antonio Dajer tonydajer at AOL.COM
Mon Dec 18 22:49:23 UTC 2017


Do you have link to the Globe story?
Thanks
Tony Dajer

Sent from my iPhone

> On Dec 18, 2017, at 12:54 PM, HM Epstein <hmepstein at GMAIL.COM> wrote:
> 
> I’d like to see all studies on improving diagnosis or measuring diagnostic error include a feedback loop with the patients. The ultimate judge of whether or not the patient was properly diagnosed is the patient. Did they improve? If not, why? And if they were compliant and didn't improve, did they go for a second opinion or switch practices or are they still suffering, untreated, or did they die? Of course, any feedback loop would  separately classify patients diagnosed with a terminal or progressive disease that can't currently be cured. (On the other hand, i personally know dozens of people diagnosed with terminal or progressive diseases who chose not to accept the diagnosis, learned they were misdiagnosed, finally identified the correct Dx, and are now fine.) I am advocating for this on all of the panels I serve. I would love to see it as a mandate for all SIDM supported or sponsored or guided research.
> Best,
> Helene
> 
>  
> ​    ​Website Twitter LinkedIn​ Facebook
> 
>> On Sun, Dec 17, 2017 at 3:49 PM, Edward Hoffer <ehoffer at gmail.com> wrote:
>> Today's Boston Globe had a special magazine on medical issues. Lead story, on P2, is a dramatic story of a young man whose debilitating illness took 8 years to be diagnosed. Clued strongly by the fact that this was an obscure disease, I guessed it after reading the first paragraph. More importantly, putting the symptoms from the first paragraph and one from the third into both DXplain and Isabel gave the diagnosis (#1 on DXplain list, #7 and red-flagged on Isabel's)
>> When will such "second opinions" become mandatory?
>> Ed
>> Edward P Hoffer MD, FACP, FACC
>> 
>> 
>> 
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> Moderator:David Meyers, Board Member, Society for Improving Diagnosis in Medicine
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Moderator: David Meyers, Board Member, Society to Improve Diagnosis in Medicine


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